And the waiting begins or continues

Here we sit at Will's Eye, waiting.  Peyton's appointment was scheduled at 11:45.  It is 12:30 here and we are still waiting.  I guess I should be happy that the "I'm hungries!" haven't started.

We met a family from Kentucky that has been battling RB since their daughter was 5 months old.  She is now 3 and in her second round of IAC.  They waited for almost 2 hours past their appointment time to be called back.  YUCK!!!!!

As I hear their story and the story of many others facing the long road that is RB.  I have to stop and remember to count my blessings.  We have been blesses to date that only one eye has been affected.  We have been blessed to date with no relapse. 

So we sit here and wait.  Sit and hope.  Hope for continued good news for all the family affected by the terrible cancer.


Just waiting,

Ang

Back in Philly

We made it with no delays.  This may be a first.  

Peyton's appointment is at 11:45 am tomorrow.  I am hopefully that we can get her to sleep in and not have to fight the hungries in the morning.  Here is to hoping anyway.

All Peyton wants to do is going swimming.  That will probably be a Thursday event.

So glad to have made it here and praying for a good report tomorrow.

Thanks to everyone who is praying for us in this journey.  We couldn't do it without you.

Angie

Headed to Philly

So it has been forever since we have updated all of you.  It seems like life gets busier by the second. 

Peyton and I are headed back to Philly for her checkup.  I will keep you all posted on the results.

Please prayer for my sweet little girl. 

Thanks a bunch,

Angie

Back in Philly

We finally made it to Philly even after a cancelled flight and a 6 hour layover.  It was a very long travel and an arrival in well after Midnight.  We were blessed to have a later appointment today and Peyton was able to sleep in a little. 

Now on to the details of the exam...

Dr. Shields says the tumor is 100% regressed and Cancer Free. The scar tissue from the tumor is now about the size of an eraser.  When we started all of this the tumor was the size of an adult thumb.  We have been hoping the her retina would reattach, but were told today that the hope of her retina attaching was very slim a this point.  To be honest my heart sunk a little when I heard the news that she would probably never see out of the eye, but then my head kept saying "SHE IS CANCER FREE!"

Dr. Shields would like us to have a follow up with Dr. Varenhorst in 3 months and then back to see her in 6 months.  We will be doing another MRI in a month as a precaution because Peyton has been complaining frequently of headaches.  Dr. Shields think that she is still trying to use the eye and that is why the headaches are coming, but better safe than sorry.

Tomorrow is a fun day in Philly filled with only things that Peyton wants to do. 



Thank you all again for all the prayers and support.

With love,

Ang,  Peyton and Rich

Summer Is in Full Swing - Peyton Update

Summer has officially started in the Adams House.  Peyton is playing T-Ball and has made many new friends.  She is also attending Asbury Preschools full time program this summer and loving every minute of it.  She is learning a lot of fun stuff too. 

Peyton, Grandma EE and I are headed back to Philly July 12th for her routine check up.  I am sure you all know that these check up are just to make sure that Peyton's tumor remains dead and that there are no other problems with her eye.  We hope that with the nicer weather we will be able to take in some site while we are there. 

We are so thankful for all the prayers and support.  Please say an extra one for Peyton on the 13th.

With Love,

Angie, Rich and Peyton

Preparing for Next Trip

We haven't had much to update as of late.  Peyton still has no vision in her left eye, but seems to be coping quite well.  She has been getting some headaches as of late, so we will be sure to monitor closely and speak with the doctors about this when we return to Philadelphia.  The pediatrician in Wichita finds nothing else wrong at this time.

We have another long trip to Philadelphia in July.  Angie is preparing to make the flight and stay arrangements.  Rich has been working on some more fundraiser events, with the possibility of a golf tournament.  We have tried working with many cancer organizations, but it is completely impossible.  We have completely given up on getting our flights paid for!  The roads are endless with these people and it seems like many of these organizations are not as helpful as they say they are!  However, we are extremely grateful to our family and friends, the Ronald Mcdonald House of Philadelpia, the Ronald McDonald House of Wichita, Michael's Way of Philadelphia, Asbury Church, and John T Arnold & Assoc.  (Hope I didn't forget anyone)

We ask that you continue to pray for Peyton's health and for continued strength with Mom and Dad.  We truly appreciate all of our family and friends who have supported us during what a been the worst year of our lives.

With Love,

The Adams Family     

Genetic Testing

We finally received a verbal report of Peyton's genetic testing.  Based on the findings Peyton's cell mutation, which cause Retinoblastoma, is isolated to her eye.  That means that the cancer cells are/were only present on that gene.  She is also no more likely than anyone else to develop other cancers.  This particular genetic testing is 90% accurate.  We should have the written report this week and I will post more detail.

We will head back to Philly in July for her routine checkup. 

On a lighter note, Peyton has a lot of things coming her way in the next few weeks.  She is preparing for her graduation from  Asbury Preschool.  There is a week full of activities to mark the end of this chapter.  We also will be celebrating her 5th birthday, and T-ball starts next week. 

Thanks again for all the support and prayers for Peyt.

Angela Adams