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Tuesday, March 29, 2011

The News

Today started the long list of appointments Peyton will have in the month of April.  We met today with Dr. Whitfield, a pediatric opthamologist.  The basic point of this appointment was to have a baseline for her vision in the left eye.  Dr.  Whitfield's diagnosis was what we expected.  The left eye does recognize light.  He is doubtful on the motion. He is not recommending that patch her right eye in order to strenghten the left because she is legally blind in the left eye.  It was a little hard to hear "legally blind".  I think that is the first time that term has ever been used by a medical professional.  

The good news is that Dr. Whitfield thinks her eye is beautiful.  He said with all the treatments she has had on this eye the lens, viens, and structure are is great condition.  Basically, the main hurdle is getting the retina to reattach.  This is a waiting game and only time will tell.

Peyton will also have an Examination under anesthesia on April 19th with Dr. Varenhorst.  This appointment will determine if the fluid from the tumor is still dissipating and if the retina is continuing to attached. 

Dr. Rosen would also like to have another MRI performed sometime in April.  This is really just a precaution to make sure that this aweful disease is no where else.  We will continue with MRI's every 6 months. 

We will be going to Philly soemtime in June or July for routine follow up with Dr. Shields.  We are hoping that we can finally take time to enjoy Philly.

On a nonmedical note, Peyton is doing great.  She is loving school and on most days she is a typical almost 5 year old.  We are gearing up for the warmer months.  Peyton will be playing t-ball and hopefully taking swimming lessons.  Still trying to convince her about swimming. 

We have been truly blessed that Peyton has been able to remain so strong throughout all the doctors and treatments.  Her only question about this appointment today was "are they going to have to poke me today?".  I can't believe that only thing through all of this that gets her upset is the blood draws. 

Thank you all who have prayed and continue to pray for Peyton, Rich and me.  We would not have had the strenght without each and everyone of you.

In His Love,

Ang

Thursday, March 17, 2011

Peyton's Commercial Debut

As promised, here is the promotional video Peyton was in for the Ronald McDonald House of Wichita.

Peyton's Ronald McDonald Commercial

Saturday, March 5, 2011

Rolling right along

Thought we would post an update even though nothing too major has recently occurred.  Peyton will see the eye specialist in Wichita in another month or so for another eye exam under anesthesia.  Then, Peyton will meet with her new pediatric ophthalmologist in Wichita to get information on starting a new "patch procedure" that will help strengthen and align her left eye.  Peyton seems to be doing OK sight wise, other than her left eye wandering at times.  Trust me, this whole thing hasn't slowed her down a bit!

I am so proud of my little girl, as she is so strong.  She makes me cry every now and then, when she tells people she has a cancer tumor by her eye.  It is very difficult to hear a 4-year old say that!  She is so smart that she knows everything about everything that is going on.  We have had to be very selective in how we answer all of her questions.  Also, for those who have not heard, Peyton just shot a commercial with the Ronald McDonald House of Wichita.  Peyton and Angie were both in it, and it was said they did wonderful.  It is currently being edited, and we should have a copy next week.  We will share it when we can. 

We will post again after her next appt.  Thanks again to all of you that sincerely think and/or pray about us on a daily basis.  We would also like to send a gracious thank you to the city of Philadelphia.  The city of Philadelphia will forever be in our hearts! 

The Adams Family