Today started the long list of appointments Peyton will have in the month of April. We met today with Dr. Whitfield, a pediatric opthamologist. The basic point of this appointment was to have a baseline for her vision in the left eye. Dr. Whitfield's diagnosis was what we expected. The left eye does recognize light. He is doubtful on the motion. He is not recommending that patch her right eye in order to strenghten the left because she is legally blind in the left eye. It was a little hard to hear "legally blind". I think that is the first time that term has ever been used by a medical professional.
The good news is that Dr. Whitfield thinks her eye is beautiful. He said with all the treatments she has had on this eye the lens, viens, and structure are is great condition. Basically, the main hurdle is getting the retina to reattach. This is a waiting game and only time will tell.
Peyton will also have an Examination under anesthesia on April 19th with Dr. Varenhorst. This appointment will determine if the fluid from the tumor is still dissipating and if the retina is continuing to attached.
Dr. Rosen would also like to have another MRI performed sometime in April. This is really just a precaution to make sure that this aweful disease is no where else. We will continue with MRI's every 6 months.
We will be going to Philly soemtime in June or July for routine follow up with Dr. Shields. We are hoping that we can finally take time to enjoy Philly.
On a nonmedical note, Peyton is doing great. She is loving school and on most days she is a typical almost 5 year old. We are gearing up for the warmer months. Peyton will be playing t-ball and hopefully taking swimming lessons. Still trying to convince her about swimming.
We have been truly blessed that Peyton has been able to remain so strong throughout all the doctors and treatments. Her only question about this appointment today was "are they going to have to poke me today?". I can't believe that only thing through all of this that gets her upset is the blood draws.
Thank you all who have prayed and continue to pray for Peyton, Rich and me. We would not have had the strenght without each and everyone of you.
In His Love,
Ang
Our Daughter, Peyton was diagnosed with Retinoblastoma on September 14, 2010. We were immediately sent to Wills Eye Institute in Philadelphia, PA to see a specialist. This is the story of Peyton's treatment and recovery.
Continued prayers go up for Peyton and family. Don't ever give up, there is a God who loves us, we have learned that many times!
ReplyDeleteShirley
We think of you all each and every day, and love reading the updates you post on here. She is such an amazing child, so full of strength and grace. We love you and will continue to pray for all of you.
ReplyDeleteLove, Jerrilyn