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Monday, May 30, 2011

Preparing for Next Trip

We haven't had much to update as of late.  Peyton still has no vision in her left eye, but seems to be coping quite well.  She has been getting some headaches as of late, so we will be sure to monitor closely and speak with the doctors about this when we return to Philadelphia.  The pediatrician in Wichita finds nothing else wrong at this time.

We have another long trip to Philadelphia in July.  Angie is preparing to make the flight and stay arrangements.  Rich has been working on some more fundraiser events, with the possibility of a golf tournament.  We have tried working with many cancer organizations, but it is completely impossible.  We have completely given up on getting our flights paid for!  The roads are endless with these people and it seems like many of these organizations are not as helpful as they say they are!  However, we are extremely grateful to our family and friends, the Ronald Mcdonald House of Philadelpia, the Ronald McDonald House of Wichita, Michael's Way of Philadelphia, Asbury Church, and John T Arnold & Assoc.  (Hope I didn't forget anyone)

We ask that you continue to pray for Peyton's health and for continued strength with Mom and Dad.  We truly appreciate all of our family and friends who have supported us during what a been the worst year of our lives.

With Love,

The Adams Family     

Wednesday, May 18, 2011

Genetic Testing

We finally received a verbal report of Peyton's genetic testing.  Based on the findings Peyton's cell mutation, which cause Retinoblastoma, is isolated to her eye.  That means that the cancer cells are/were only present on that gene.  She is also no more likely than anyone else to develop other cancers.  This particular genetic testing is 90% accurate.  We should have the written report this week and I will post more detail.

We will head back to Philly in July for her routine checkup. 

On a lighter note, Peyton has a lot of things coming her way in the next few weeks.  She is preparing for her graduation from  Asbury Preschool.  There is a week full of activities to mark the end of this chapter.  We also will be celebrating her 5th birthday, and T-ball starts next week. 

Thanks again for all the support and prayers for Peyt.

Angela Adams

Thursday, May 5, 2011

Good News


Peyton recovering from MRI sedation

I am a little behind on posting the results of Peyton's latest round of testing.  We finally got the MRI scan results.  Peyton is still officially CANCER FREE!  We will be heading to Philly sometime in July so the doctors there can evaluate the remaining "dead tumor" in her eye.

We are still waitng for the results of the genetic testing, but given the timeline we should be seeing them anytime now.  When I know something, I will post the news.

Life continues to be busy as Preschool is winding down.  Peyton will be graduating.  Yes, I said graduating from Preschool on May 26th.  This month is packed full of fun activities for the kids as the prepare to embark on new chapter, Kindergarten. 

Peyton will also be playing T-ball this summer.  For those of you who know me well, pray of patience and understanding in this noncompetitive sports adventure.  Hopefully, I will NOT be one of those parents. 

Peyton will also be turning 5 this month.  I cannot believe how the time has flown by.  She is super excited for her party and especially excited to see her Aunt Tina and the boys who will be here for her birthday.

I cannot ever say this enough.  Thank you all for your prayers and support through this journey with Peyton.  I truly believe that each and every one of you held us up during the hardest moments in life so far. 

God Bless,

Angela